Three Year Old from Vermont Flown to Boston for Rare Disease Evaluation
We’d like you to take a moment to meet Henry, a young three-year-old boy from Vermont who recently traveled with his mother, Dana, on an Angel Flight NE mission. When Dana first contacted us in March of this year, she was asking for our help so Henry could travel for evaluation for a rare disease – Cleft Lip and Palate – that affects one in a few thousand children per year.
Since Dana’s first conversion in March, Angel Flight NE’s dedicated Mission/Flight Coordination Team has assisted Henry and his family to access life-changing medical care at Boston Children’s Hospital. Being told your child has a rare condition is life-changing for a family, but being told you must travel hundreds of miles for specialize care can be daunting and overwhelming. Henry’s flight of healing and hope could only have been accomplished through the help of our amazing AFNE Volunteer Pilots and Earth Angels, and a grant from The Alexion Charitable Foundation.
Dana shared the following recently:
“As Henry’s mother, I have been unable to work for 2.5 years due to 150+ doctor appointments, four surgeries and a combination of about twelve months of recovery periods. Henry’s dad was laid off in September. We also have an eight-month-old baby.
We are meeting with the Boston Children’s Hospital Cleft Lip and Palate Team. Unfortunately, the University of Vermont Medical Center does not have the ability to care for Henry’s rare condition. The volunteer pilots – Lee and Rich – were amazing along with Earth Angel Rod who was lovely (and a great tour guide!). Thank you so much to Angel Flight NE for all of their help with our Henry.”
Much like all our patients, Henry remains an enduring member of the Angel Flight NE family. Daily, we encounter mission/flight requests like Henry’s, and we consider it a profound privilege to be integral to our patients’ healthcare journeys. It goes beyond just flying them; it involves a deep and sincere care for all those who seek our assistance during challenging moments in their lives.
Thank You and God Bless You for your support and belief in our healing mission. With your help and belief in our mission, we can ensure that distance is never an obstacle for patients, like Henry.
Fr. Larry & the AFNE Staff