Patient Resources ~ Partnering to Save Lives
Angel Flight NE prides itself on partnering with national & international organizations that work with patients and families to ensure they receive the best treatment and support.
Below is a listing of some of the organizations we work with to ensure that distance is never an obstacle for patients to access the care they need:
- Adenoid Cystic Carcinoma Organization International
- Avery’s Hope
- AXYS (Association for X and Y Chromosome Variations)
- Cute Syndrome Foundation
- Epilepsy Foundation
- E.WE Foundation
- FOXG1 Research Foundation
- Glut1 Deficiency Foundation
- K-T Support Group (Klippel Trenaunay)
- LGS Foundation
- Lymphangiomatosis & Gorham’s Disease Alliance (LGDA)
- PFIC Advocacy and Resource Network, Inc.
- Phelan-McDermid Syndrome Foundation
- Prader-Willi Syndrome Association
- Sisters’ Hope Foundation
- Slc6A1 Connect
- Tatton Brown Rahman Syndrome Community
- The RYR-1 Foundation
- Wake Up Narcolepsy, Inc.
- Wilson Disease Association
- Vestibular Disorders Association
- VHL Alliance
If you are from an organization that would like to join this list and help support Angel Flight NE within your patient & family groups, please email us at firstname.lastname@example.org.