Patient Resources
Angel Flight NE is committed to connecting patients and families with the resources, support, and information they need throughout their medical journey.
Below is a list of organizations that work to connect patients and families with valuable resources and services. Through these cinnections, we strive to ensure that distance, financial barriers, or lack of information never stand in the way of hope and healing.
If your organization is interested in collaborating with Angel Flight NE and becoming part of this network of support, please contact us at Hope@angelflightne.org.
Rare Disease/Disorder Organizations
- 17q12 Foundation
- A Cure in Sight
- AMDA (Acid Maltase Deficiency Association)
- Adenoid Cystic Carcinoma Organization International
- Avery’s Hope
- AXYS (Association for X and Y Chromosome Variations)
- Cerebral Palsy Resource Guide
- Cure CMD
- CureGM1
- Cute Syndrome Foundation
- Dravet Syndrome Organization
- Ehlers-Danlos Society
- Epilepsy Foundation
- E.WE Foundation
- Fabry Disease Foundation
- FOXG1 Research Foundation
- Glut1 Deficiency Foundation
- K-T Support Group (Klippel Trenaunay)
- KIF1A.ORG
- LGS Foundation
- Laryngeal Cleft Network
- Lymphangiomatosis & Gorham’s Disease Alliance (LGDA)
- National Gaucher Foundation
- NORD
- PCD Foundation
- PFIC Advocacy and Resource Network, Inc.
- Phelan-McDermid Syndrome Foundation
- Prader-Willi Syndrome Association
- PRISMS (Parents and Researchers Interested in Smith-Magenis Syndrome)