Volunteer Pilots Assist Maine Patient for 30 Years to Access Medical Care
Please take a moment to read about Erika’s healthcare journey that began over 30 years ago. Erika began having medical challenges at 17 months old that required frequent trips to Boston Children’s Hospital starting before her 3rd birthday. Multiple initial diagnoses included primary immunodeficiency, progressive myopia, global delays, GI dysmotility, Complex III mito dysfunction and […]
NY Patient Travels to Boston for Care at Shriner’s with AFNE Volunteer Pilots Assistance
Please take a moment to read about Yehuda’s healthcare journey that began over 6 years ago. When Yehuda was only 11 months old, he was severely burned in an accident. Now he is a 7-year-old boy and has been on a very long, complicated journey to recovery. The number of surgeries Yehuda has been through is countless […]
Maine Patient Accessing Specialized Cancer Treatment at Mass General with AFNE’s Assistance
Please take a moment to read about Raya’s healthcare journey to treat a rare form of brain cancer that she was diagnosed with this past spring requiring her to travel from Frenchville, ME to Boston, MA for specialized care and treatment. When 21-year-old Raya was not feeling well, she visited her local doctor and after […]
NY Patient Travels to Boston for Treatment of Rare Cancer
Please take a moment to read about Nanette’s healthcare journey to treat a rare cancer of the salivary gland that she was diagnosed with in 2022. Hearing you have cancer is scary enough, but to learn you have a rare form of cancer requiring specialized treatment at Dana Farber in Boston, MA when you live in […]
5-Year-Old NJ Patient Connected with Life-Saving Medical Care for Rare Disease
Please take a moment to read about adorable 5 year old Meredith’s healthcare journey to treat a rare condition that she was diagnosed with in December 2022. Born prematurely at 29 weeks, Meredith only weighed 2 lbs. 12 oz and spent 3 months in the NICU before being able to go home. She is a fighter […]
Maine Patient Requires Urgent Transport to Boston
When 15 year old Aliana became very ill suddenly, her mother rushed her to the emergency room in Presque Isle, ME immediately. After many tests, it was determined that Aliana could be suffering from a pulmonary condition that required further consultation with a specialist at Mass General Hospital in Boston, MA. As a single mother […]
Three Year Old with Rare Disease Transported from Vermont to Specialized Medical Care
When 3 1/2 year old Christian was diagnosed with a rare disease, his family immediately worried about how they would access the medical care he needed to assist with this diagnosis. Christian suffers from a rare Genetic Disorder called Leukodystrophy, which is a group of rare, genetic disorders that affect the white matter of the brain. […]
Brain Cancer Patient Travels from MA to PA for Clinical Trial
Please take a moment to read about Daniel from Beverly, MA. When Daniel was diagnosed 5 years ago with a rare form of brain cancer by his medical team at Dana-Farber in Boston, he and his wife not only had to face the diagnosis, but also what options were available to treat Daniel. After conferring […]
Patient Diagnosed with Rare Disease Provided Free Air Transport to Access Specialized Medical Care
Please take a moment to read about Laura from Pittsburgh, PA When Laura was diagnosed with a rare form of blood cancer, it was recommended she explore a clinical trial being conducted at Memorial Sloan Kettering Cancer Center in New Jersey. Not only was the distance from Pittsburgh to New Jersey daunting, but the travel […]
Maine Resident Flown Free to Receive Care for Rare Disease
Please take a moment to read about Siena – diagnosed with a rare hip disease (Legg-Calve-Perthes) at the age of four that has affected her left hip causing the bone to disintegrate. This process went on from when she was four to eight years old. And then the bone started to regrow from ages eight […]