Vermont 4 Year Old Able to Access Specialist in Boston for Rare Disease
We’d love for you to take a moment to meet Bow – a recent addition to the Angel Flight NE Family from Vermont.
Bow (age 4) suffers from Coat’s disease that caused retinal detachment and he was required to travel to meet with a specialist. Due to weather, Bow’s trip to Boston had been cancelled twice before it was finally flown in February. Many of our families don’t have the means to travel without the support of Angel Flight NE!
Last month, with the help of two of our amazing volunteer Angel Flight NE Pilots – Ed T. (flown nearly 50 flights since 2018) and Tom P. (volunteered for nearly 40 flights since 2021) – Bow was delivered to his appointment at Boston Children’s safely.
With the generous help of the Alexion Charitable Foundation with a grant dedicated to patients with rare and ultra-rare disease, we had the ability to support the family with both hotel and ground accommodations.
Mission/Flight requests, like Bow’s, happen daily and we are privileged to have the opportunity to not only fly but deeply care for all who turn to us for help at difficult times in their lives. As with all of our patients, we are here for Bow and his family for as long and as often as he needs our help and to ensure the best possible outcome.
Thank You and God Bless You for your support and belief in our healing mission.
With your help and belief in our mission, we can ensure that distance is never an obstacle for patients, like Bow.
Fr. Larry & the AFNE Staff