Maine Resident Flown Free to Receive Care for Rare Disease
Please take a moment to read about Siena – diagnosed with a rare hip disease (Legg-Calve-Perthes) at the age of four that has affected her left hip causing the bone to disintegrate. This process went on from when she was four to eight years old. And then the bone started to regrow from ages eight to twelve. This disease causes lots of pain not only in her hip but also in her leg and knee. It has thrown the right side of her body off and has affected her spine.
This disease affected her childhood greatly. Unfortunately, Siena couldn’t participate in normal activities of a child like running, jumping, certain sports, sitting in hard chairs & floors and even sleeping comfortably. Siena started seeing a pediatric orthopedic specialist at Boston Children’s Hospital almost ten years ago and has been monitored with x-rays until her growth plates closed in her hip.
Angel Flight NE was introduced to Siena when she was required to have surgery last December.
Her mother shared after her most recent trip:
“We are so grateful that we found Angel Flight NE. I can’t thank you enough for flying us to Boston Children’s ! What a gift to us that we could go stress free from travel! The pilots and ground angels are so incredibly kind and supportive. We can’t thank you enough.”
Siena will have monthly trips to Boston for post-op and possibly a second surgery in four to six months to remove the screws in her hip.
As with all of our patients, Siena forever has a place in our heart and will remain a part of the Angel Flight NE family.
Mission/Flight requests – like hers – happen daily and we are privileged to have the opportunity to not only fly but deeply care for all who turn to us for help at difficult times in their lives. We are here for her for as long and as often as she needs our help and to ensure the best possible outcome.
Thank You and God Bless You for your support and belief in our healing mission.
With your help, we can ensure that distance is never an obstacle for patients, like Siena and the thousands of others we assist yearly.
Fr. Larry & the AFNE Staff